Jonathan Hume – Non-24-Hour Sleep-Wake Disorder Awareness Day – The World Spins Madly On

“I just got lost and slept right through the dawn, and the world spins madly on”

The World Spins Madly On, The Weepies

Today is November 24th. It is also the ‘Awareness Day’ for Non-24-Hour Sleep-Wake Disorder, a rare and “extremely debilitating” circadian rhythm disorder. We have no idea how many (or how few?) people are affected by it, or how to even treat it.

There has been a fair bit written on why ‘Awareness Days’ are, in general, a bit rubbishself-indulgent and excessively corporate and fundraising-y. I generally agree, but I’m going to defend this one (and a few others) – N24, like many things, is rare enough that not even doctors have heard of it if they don’t specialise in the area and our suffering could be so significantly alleviated by understanding and accommodations – and this can only happen once people are ‘aware’.

I’m also not raising money and, unlike a lot of ‘Awareness Day’ stuff, I’m someone with the condition under discussion. This is us trying to make our (and other people’s) lives better, and not get Good Samaritan Browniepoints while ignoring the issue for the rest of the year. This is a daily struggle, and one without end…

http://wordthingsofjon.blogspot.co.uk/2015/11/non-24-hour-sleep-wake-disorder.html

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2 thoughts on “Jonathan Hume – Non-24-Hour Sleep-Wake Disorder Awareness Day – The World Spins Madly On

  1. So glad I found this info. My daughter has not had a good night sleep in over 1 1/2yrs. It started 2-3 months before she god her period. I think it’s hormones but it could be this sleep cycle thing too. I need a dr that will do the blood work & help me with her. Please give me some advice.

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